I like to believe I have a handle on my life. Or at the very least that I can handle what life throws at me. The truth however I’m realizing is that I won’t ever have a handle on my life. When I think I understand my new conditions another symptoms emerges, and another test […]
My health is not my life.
“Health is life.” A quote that “normal” and “healthy” people say. And by “normal” and “healthy” I mean they don’t have chronic illnesses that impact day to day life. A quote that 100% angers me. A quote that I 100% think is completely ignorant. I’m not healthy. I have chronic illnesses. When I’m not in […]
My body is broken but I’m not
Today as I reflected on yet another appointment and test results I found myself repeating “My body is broken. My body is what doesn’t work properly. Not me. I am not this body. I just live in it.” But it is hard when you feel like you just need a break from taking care of […]
Welcome to EDS Awareness Month 2018
May is EDS Awareness Month so I figured it was time to brush the dust off the blog and start posting again. Some days I’ll post facts and information about EDS in general and other days I’ll share personal anecdotes. To start things off here are some basics about EDS 1. EDS, Ehlers-Danlos Syndrome, is […]
Holidays this yearÂ
I love Christmas. I love this time of year. I love watching the snow fall. I love spending time with family and soaking up the love and joy. Celebrating the birth of Christ. But this year is hard. This year isn’t like years past. 2017 has undoubtedly been the roughest year of my life. And […]
Couches
Today I am thankful for couches. I’m thankful that there are couches in the restrooms at school that I happened to be walking by. I’m thankful I had a chance to sit down when my body decided it needed a break suddenly. Today I’m thankful for couches.
The name
“Chronically Victorious” Chronically: This is the pretty self explanatory part of the name. I have chronic conditions. Simple. Victorious: This part I took inspiration from my name, specifically my middle name Victoria. Before I came into the world my mom had a miscarriage. I cannot begin to imagine the emotional toll that took on my […]
Chronically Victorious 